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LPA DISTRICT 4
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*Schedule is tentative & subject to change. More activities/workshops may be added at a later date.

nutrition - Gwen
woman’s group
basketball clinic
soccer clinic
kids swimming lessons
average height teen outing to a theme park

Thursday, October 9
​

​LPA Registration
3:00 PM - 5:30 PM & 6:30 PM - 8:30 PM
- Pick up your name badges and welcome bag.

5:30 Kickback or Dinner (On Your Own)


Young Adults Dinner Meet Up
5:30 PM - 7:00 PM
​- Any young adults ages 18+ are invited to come mingle and have dinner together at the Drury’s
5:30 Kickback.​

​Offsite Activity - Cirque du Soleil??
​5:30 or 8:00


Ice Cream Social
7:00 PM - 8:00 PM
Cost: $5 per person
- Let’s kick off the weekend together and make your own ice cream cups with all the toppings!


Corn Hole Tournament
8:00 PM - 10:00 PM

Cost: $5 per person
- Hang out and play games with one another. Winner takes half the pot!
​

​Dance (Sing-along?)
8:30 PM - 12:00 AM
- Mingle and dance the night away! Cash Bar.

Barty Room


Friday, October 10

Breakfast (On Your Own)


OWLS Walk or Roll Session
8:30 AM - 9:30 AM
- Start the morning off with a strole to Disney Springs using your feet or scooter.


LPA Registration
9:00 AM - 11:00 AM
- Pick up your name badges and welcome bag.


​Kids Offsite Activity @ Rainforest Cafe - Ages 5-11
9:00 AM - 12:00 PM
Cost: $15 per kid & $20 per adult parent/chaperones (includes lunch)

- Come experience the only T-Rex Cafe in the world! Learn about the prehistoric world of dinosaurs and enjoy lunch together. Deadline to purchase tickets is Sept 13!

Tween & Teen Activities - Ages 11-19
10:30 AM - 12:00 PM
​Cost: $5 per teen
​- Meet up with others to socialize, swim in the pool and have pizza for lunch. Teens will be supervised by adult volunteers.


OWLS Meeting & Lunch
11:00 AM - 12:00 PM
​- Join the OWLS (Older Wiser Little Seniors, ages 50+) group for a meeting and then lunch together offsite at the Olive Garden restaurant.​


Young Adults Offsite Lunch & Mini Golf​ - Ages 18+
12:00 PM - 3:00 PM
​Cost: Everyone will be responsible to pay individually for their own food/mini golf.
​- Join us for lunch and a fun afternoon of mini golf.


Lunch & Local Activities (On Your Own)

​Reptile Show
​1:30 PM - 2:30 PM
- Come experience a fun hands-on introduction to the world of reptiles! Everyone will learn about the animals while interacting with them and have time for photo opportunities as well.


The Johnsons' Workshop????

LPA Registration
3:00 PM - 5:30 PM & 6:30 PM - 8:30
PM
- Pick up your name badges and welcome bag.
​

Painting Class
3:00 PM - 4:00 PM
Cost: $5 per person - Ages 10+

​- Paint and decorate winter/holiday theme ceramics. Materials provided. Ages 9 and under are welcome with a parent in attendance.

​Trivia???


​5:30 Kickback or Dinner (On Your Own)

​90's Welcome House Party
7:00 PM - 8:30 PM
- Come get down with us as we catch up with LPA friends and meet new ones! Feel free to wear your disco threads (totally optional!) and be ready to have a groovy time. ​Best costume wins a prize! Light refreshments will be served.

Dance
8:30 PM - 12:00 AM
- M
ingle and dance the night away! Cash Bar.

Barty Room

Saturday, October 11

Breakfast (On Your Own)

​
OWLS Walk or Roll Session
8:30 AM - 9:30 AM
- Start the morning off with a strole to Disney Springs using your feet or scooter.
​

LPA Registration
9:00 AM - 11:00 AM
- Pick up your name badges and welcome bag.

Kids Room - Ages 3-10
9:00 AM - 12:00 PM
Cost: $5 per child
-
Kids are invited to enjoy crafts, games and snacks. Monitored by volunteers. Parents must stay in the hotel and kids must be fully potty trained. Ages 3 and under are welcome with a parent.

Tween/Teen Offsite Activity @ Hawaiian Rumble Adventure Golf​ - Ages 11-19
9:00 AM - 12:00 PM
​Cost: $25 per teen
​- Hang out playing mini golf followed by lunch at Chick-fil-A. Teens will be
shuttled over and chaperoned by adult volunteers.

Parents Meeting
​9:00 AM - 9:45 AM
- Come meet other parents, ask questions and share experiences. Topics will range from newborn to high school aged LP kids.

​
Medical Workshops
10:00 AM - 12:00 PM
​- Informative discussions lead by members of the LPA Medical Advisory Board(MAB) and other dwarfism specialists.


Young Adults Offsite Lunch & Bowling - Ages 18+
12:00 PM - 3:00 PM
​Cost: Everyone will be responsible to pay individually for their own food/bowling.
​- Venture out to downtown Disney Springs for lunch and an afternoon of bowling
at Splitsville.
​
Lunch & Local Activities (On Your Own)

Medical Meetings
1:00 PM - 4:00 PM
- Sign up to visit with a member of the LPA
Medical Advisory Board(MAB) during this time.

Road to the Games
2:30 PM - 3:30 PM
- Meet Paralympic Swimmer for Team USA, Morgan Ray, who won a silver medal at the 2022 World Championships and placed fourth at the 2023 World Championships. Morgan will share his story and experiences as an elite athlete with dwarfism and his goal of making the 2024 team in Paris. He will then
demonstrate techniques and strokes outside in the pool. Anyone is welcome to join the pool session or observe. Parents must be present for kids to participate in the pool.

Bingo
4:00 PM - 5:00 PM
- Did someone say B-I-N-G-O?! Grab a bingo dauber and get ready to win some prizes!

5:30 Kickback or Dinner (On Your Own)


OWLS Dinner Meet Up
5:30 PM - 7:00 PM
​- Join the OWLS (Older Wiser Little Seniors, ages 50+) group for dinner together at the Drury’s
5:30 Kickback.​
​
​
Group Photo
7:00 PM
​- Don’t miss the group picture!


General Assembly Meeting
7:15 PM - 7:30 PM
- Find out what's happening in LPA!


Talent/Fashion Show
7:30 PM - 8:30 PM
​
Andrew Montzingo to host it
- Do you sing, dance, play an instrument, do magic or have a favorite outfit to show off to everyone?! We look forward to seeing you in the spotlight! Sign up on the registration form.

Glow Party & Dance
8:30 PM - 12:00 AM

- Let's glow crazy as we wrap up the weekend together! It’s sure to be bright, so dress to impress in neon or white! Cash Bar.

Barty Room
​

Sunday, October 12
​
​
Breakfast & Goodbyes (On Your Own)

Mickey’s Not-So-Scary Halloween

Separate ticket purchase. Available dates - Oct. 3, 5, 6, 9, & 10. Prices may vary each night. 

​Enter Magic Kingdom at 4:00pm. Everyone without an event ticket will exit park by 6:00pm. Event starts at 7:00pm and includes Trick or Treating with all of the characters. 

For more details and to purchase tickets visit here:

https://disneyworld.disney.go.com/events/mickeys-not-so-scary-halloween-party/purchase/
Kids Room - Ages 3-5
9:30 AM - 12:00 PM
Cost: $5 per child
- Kids are invited to enjoy crafts, games, and snacks while monitored by volunteers. Parents must stay in the hotel and kids must be fully potty trained. Ages 3 and under are welcome with a parent.

​


OWLS Coffee Talk
9:00 AM - 9:45 AM
​- Join the OWLS (Older Wiser Little Seniors, ages 50+) group for a morning meet up together.



OWLS Lunch Meet Up
11:30 AM - 12:30 PM
​- Join the OWLS (Older Wiser Little Seniors, ages 50+) group for a lunch meet up together.​

​​

​—//--
​Thank you for registering, we look forward to seeing you at the regional!! If you would like to help out, you can sign up here to volunteer… https://bit.ly/D4Spring2023Volunteers​

*Located across the street from the Drury Plaza.

​DoubleTree Suites by Hilton

2305 Hotel Plaza Boulevard
Lake Buena Vista, FL 32830

407-934-1000
DoubleTree Suites Website <——Not the link to make a room reservation!

LPA Reservations: Book online using this link https://bit.ly/LPAOverflowHotel or call 800-340-2494 and ask for group code #907. LPA Reservation cut-off date is September 4! Booking cut-off date has ended.

LPA Room Rate: $157/Night + Tax
Deluxe two-room suites feature a bedroom with either a king or two queen size beds. A separate living room area includes a pull out sofa sleeper. All rooms have a refrigerator, microwave and coffee maker.

​LPA Self-Parking Rate: $13/Daily + Tax

The LPA Room Rate and LPA Self-Parking Rate is available
from October 2-11, for anyone that would like to extend their stay.

Check-In: 4:00 PM Check-Out: 11:00 AM

Room Cancellation Policy: Reservations must be cancelled at least 72 hours before your scheduled arrival date. Cancelling after this deadline will result in a charge of one nights stay plus taxes.

Amenities:

- Restaurant & Bar Onsite
​- Free Wi-Fi Internet
- Outdoor Pool,
Whirlpool, Splash Pad, Tennis Court and Fitness Center
- Complimentary Shuttle Service available to all four Walt Disney World Theme Parks and Disney Springs
Don’t forget to review the LPA Covid Liability Waiver & Member Code of Conduct! Click here...

STEP 2 - PAYMENT via PAYPAL DONATE

Payment here
All registration fees are non-refundable after October 1, 2022. ​Any requests for refunds must be sent in writing by email before this date to [email protected]. Refunds for registration and activity fees, minus a $20.00 processing fee, will be granted for all requests received on or before October 1, 2022. Requests made after this date may not be honored. Emergencies and illnesses, including Covid, will be considered on a case-by-case basis.

There are no on-site refunds. Registrants who do not cancel before the deadline and/or do not attend the regional, forfeit all registration fees and activity fees.

Tickets for activities may be traded, sold or given away at the discretion of the ticket holder. LPA takes no responsibility for trading, selling or exchange of tickets.
Schedule is tentative & subject to change. More activities may be added at a later date.

​Highlights for the weekend include a Welcome Social, Kids Room, Teen Activities, LPA Medical Advisory Board Members, Workshops, Bingo, Dances and more

​Medical Workshop
11:00 AM - 12:00 PM
​- Q&A discussion lead by dwarfism specialists.

Medical Meetings
1:00 PM - 4:00 PM
- Sign up for a 15-20 minute visit with the LPA MAB doctors during this time.

​Please register first before signing up for an appt.

Medical Panel Workshop
10:30 AM - 12:00 PM
​- An informative Q&A discussion lead by the following dwarfism specialists and members of the LPA Medical Advisory Board(MAB). A few other physicians will also be joining us from

Julie Hoover-Fong, M.D., Ph.D. - Geneticist (Chair of the LPA MAB)
Director, Greenberg Center for Skeletal Dysplasias
Johns Hopkins University
Baltimore, Maryland

​George Jallo, M.D. - Neurosurgeon
Clinical Practice Director of Pediatric Neurosurgery
Johns Hopkins All Children’s Hospital
St. Petersburg, Florida

Jeffrey Campbell M.D. - Pediatric Neurosurgery
Nemours Alfred I. duPont Hospital For Children
Wilmington, Delaware
Stuart Mackenzie, M.D. - Pediatric Orthopedic Surgeon
Nemours Alfred I. duPont Hospital For Children
Wilmington, Delaware
Karen Turner, MPT - Pediatric Physical Therapy
Nemours Alfred I. duPont Hospital For Children
Wilmington, Delaware

Angela Duker, MS, LCGC - Genetic Counselor
Nemours Alfred I. duPont Hospital For Children
Wilmington, Delaware

Mari Groves, M.D.
Pediatric Neurosurgery
Johns Hopkins Hospital
Baltimore, Maryland

David Tunkel, M.D.
Director of Pediatric Otolaryngology
Professor of Otolaryngology - Head and Neck Surgery
Johns Hopkins University
Baltimore, Maryland

​https://bit.ly/D4Spring2023Medical

​Dr. Melissa Crenshaw - Geneticist
Dr. Alyssa Fritz - Psychologist
​Dr. Jennifer Katzenstein -

Dr. Dan Hoernschemeyer - Orthopedic Surgeon
University of Missouri Hospital
Columbia, Missouri

A few other physicians will also be joining us from the Skeletal Dysplasia Program at Johns Hopkins All Children’s Hospital in St. Petersburg, FL.

In addition, several doctors will be there from the skeletal dysplasia group at All Children’s Hospital in St. Petersburg, Florida. Their comprehensive clinic is led by Dr. Jallo and it includes several specialties.

​
​Google form registration closed message:
Registration has closed. If you would like to still attend the regional, you can register onsite at the event! If you have any questions, please email [email protected] or text Aimee Rudd at 941-587-5627. All registration fees are non-refundable after October 1. Thank you!

KID'S ROOM (ages 5-10) - Dallas I Meeting Space
9:00 AM – 12:00 PM
Cost: $5/ per kid

Children will enjoy activities monitored by volunteers. Activities will include games, crafts, and fun. Parents planning to attend a workshop can drop kids off at the kids room. Parents are welcome to stay in the kid's room if needed. Kids must be potty trained, if not a parent must stay in the room. If you would like to volunteer, let us know! Email: [email protected]

Ages 1-4 are welcome with a parent

welcome page info

What is a Regional?
Regionals are held two times a year.  One in the Spring and one in the Fall.  Regional locations are voted in the district meetings at a prior Regional.  We move locations around the 5 state area.​
An example of an Agenda at a Regional;
Friday night - Registration, Food provided by the District, fun by the pool.
Saturday morning - District Meeting, Parent Meeting, Kids Room provided during the meeting, playtime, craft, snack and entertainment provided so the parents can attend the meetings
Saturday - we pick a hotel with a pool, you will find most of the members and kids at the pool.
Saturday night - Banquet dinner, raffle, DJ and Dance
Sunday morning - some grab a little pool time, packing and saying goodbye to friends.

Presenters & Expo ​Vendors

​*Is there something you want to see on the agenda? Would you like to lead an activity, host a workshop or have another idea? Contact Aimee Rudd to discuss things further.

Want to lead an activity, host a workshop or have another idea for the agenda? Do you sell something and want to participate in the Expo? Contact us for more info. Email: [email protected].

Advocating for your Children and School
9:00 AM - 9:45 AM

-
​​

=================================================

Meet Para Swimmer for Team USA and D4 member, Morgan Ray, who won a silver medal at the 2022 World Championships, and placed fourth at this year's world championships despite being ill.

Morgan will share his story and experiences as an elite athlete with dwarfism and his goal of making the 2024 Paralympic team in Paris next year. The second half of this workshop will be outside in the pool where Morgan will demonstrate techniques and strokes in the water. All are welcome to either observe or join in during the pool session.

Please come to the talk already wearing your swimsuit. Parents must be present with their kids if they want to participate in the pool.



​Restorative Yoga
8:00 AM - 9:00 AM
- Start the morning off with a relaxing yoga experience lead by Kristen DeAndrade. This will be an intro lesson focusing on deep breathing and stretching for the mind/body. No experience needed to participate.

​Little Legs, Big Heart
2:00 PM - 3:00 PM
- Sit down with Author and Speaker, Kristen DeAndrade as she leads this open discussion. Kristen will share her journey having dwarfism and for those interested in spinal stenosis, lengthening


Stenosis workshop
Kristen DeAndrade
Delve into the journey of skeletal dysplasia, confronting the unknowns of of spinal stenosis. Through Kristen's shared experience and expert insights from her medical team, she aims to empower and educate our community, paving the way for informed decisions and improved quality of life for children and adults.


​
Alterations Class
2:00 PM - 3:00 PM
- Come learn the basics of clothing alterations with Jennifer Edwards. Go over hemming pants and sleeves along with a few tips on altering clothes for little people.

​
Expo
1:30 PM - 4:30 PM
​- Check out a few of the vendor tables that fellow members will have set up.

​OWLS Meeting
3:00 PM - 4:00 PM
OWLS Mixer
Come join OWLS (Older Wiser Little Seniors) for games and trivia!

Bowling (ages 11-18) 9:00AM-12:00PM
Cost: $5/ per person
Meet in Lobby - go to Main Event from 930 AM -12 PM
Come introduce yourself and meet other teens your age in our district. Teens will be chaperoned and carpool/shuttle over to Main Event to bowl and hang out. We will reserve some lanes and have fun!

Essential Oils 101 Workshop
1:30 PM - 2:30 PM
- Join Aimee Rudd during the Expo, for this open discussion as she shares about Young Living Essential Oils. Learn what essential oils are, why purity matters, how to use them to help support your health and much more. All workshop attendees will have the opportunity to try samples and receive an essential oil swag bag.

Microhabits for Health Workshop
2:00 PM - 3:00 PM
​- Sit down with certified Health and Wellness Coach, Angela Singletary as she leads this open discussion. Angela will share her health journey having dwarfism, her passion to help others in our community and how to easily break down your goals in all areas of your life into simple steps ‘microhabits’ to support your overall health.

If you love children, and are over 16 years of age, then volunteer in the Kids Room! If you want to greet your friends as they check in and meet new families, then help out at registration.

​Online Virtual Events: Members agree not to share access links and/or codes with others without permission from LPA. LPA reserves the right to remove you from the virtual event if your participation or behavior creates a disruption or hinders the event or the enjoyment of the event content by other attendees. Recording, Photographing, Live Streaming and Videotaping - Members agree not to record, take pictures and/or broadcast audio/video any part of the LPA virtual event without the consent from LPA and all participants.
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